An Important Point To Include

Hi Fernando,

You’ve got a great start.

I would encourage you to accurately represent the diversity of differences of sex development.

I’ve met at least a hundred women with Complete Androgen Insensitivity Syndrome and another hundred with Turner Syndrome. Although a few think of themselves as intersex rather than intersex female, not one is androgynous. One excellent example is Eden Atwood.

I know a handful of people with Partial Androgen Insensitivity Syndrome, Mixed Gonadal Dysgenesis, Congenital Adrenal Hyperplasia, and other conditions resulting in ambiguous genitals. A minority of those I know, which may not represent the population, are intentionally androgynous.

One of the misconceptions I have to deal with every time I talk about intersex is that it’s all about gender. For most of us, it simply isn’t.

Some of the activists downplay the medical aspects of these conditions. Perhaps because ambiguous genitals are essentially a cosmetic issue and don’t need to be treated as medical problems. And yet, most DSDs have associated medical consequences. Yes, some are from inappropriate treatment, but many are from the same root cause as the intersex condition itself. For instance, I have heart and kidney malformations and a small jaw due to Mixed Gonadal Dysgenesis. Max Beck died of a condition-related cancer. The average adult height in Turner Syndrome is something like four foot seven. Many women with AIS have no axillary hair. Some have osteoporosis or osteopenia. Some forms of Congenital Adrenal Hyperplasia are life-threatening.


Lianne Simon


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